I had a GREAT birthday, and I will share pictures in another post later today. But, like many of my birthdays, it will also be memorable because of a difficult thing that happened.
Not all difficult things are bad, of course, and sometimes they're even downright good, but just hard enough that they feel bad in the moment. That's how it was on my 18th birthday when our wards split. I grew up in that ward, and I was already terrified of changes that were soon coming (which also turned out to be wonderful), and the idea that my friends and family would be in different wards was just difficult news to swallow. Of course, now I see how WONDERFUL it is, but at the time it was like the worst birthday ever.
My fifteenth birthday was pretty awesome, except for the fact that three days earlier my parents announced to us that they were going to divorce.
My 21st birthday, we lost President Bateman at BYU. He didn't die, he just got replaced. I loved that guy. Another not-so-bad-but-still-painful memory.
My 24th birthday, my little brother tried to kill himself in prison.
So, every 3 years, something at least semi-bad (or hard or whatever) has happened. I thought I broke the streak last year when, on my 27th birthday, I had a fabulous day with nothing to bring it down.
I guess it just forgot that year, so it decided to make up for it.
The good news is, Caida has a real diagnosis from doctors who finally know what's going on in her head. The bad news is, the diagnosis is CORTICAL DYSPLASIA. Basically, the dummied-down version of everything I've read, is that when her brain was forming, for some reason it didn't form quite right, and neurons clumped together are misfiring as a result. This is causing her seizures. And it usually causes developmental delays (which could be why she still talks like a 4-year-old or why she's so easily distracted). There is no cure. Anticonvulsant medications are the first road you try, but 70% of kids who have CD are resistant to this. The only other alternative so far has been brain surgery, in which they remove the affected area of the brain (some kids have an entire hemisphere affected, deep down, but others only have a little spot above some part of the brain that is easy to get to and won't affect them too much...I don't know how much her brain is affected yet). What a scary thing! And SOOOOO disheartening for my poor little Caida Waida Potata Head. That means that she will probably never be able to drive a car. She will likely continue to have seizures forever (even IF she had surgery, most people still experience them once in a while), and over time the seizures themselves will cause brain damage. She will get slower and slower in some area of development or another. It's just not going to be an easy life.
But she's a little girl with a STRONG heart. And a powerful will. Brains are such a NEW thing in medicine, really--we're only beginning to understand any of it, and people rewire themselves all the time to compensate. Besides, there is a WIDE range of abilities in children with CD, and I think Caida is really on the higher end of everything. So I believe that, given enough support and love, she will still have a wonderful life. Hard, yes. But wonderful. And I am personally SOOOOOOOOOO proud to call her my niece. Without children of our own, our niece and nephew are the kids we love most in the whole wide world, and you don't have to qualify for that love by being perfect in any way. It's just a given. :) So I'm not too worried.
I am also SOOOOOO grateful for the knowledge I have of the Atonement of Christ and the Resurrection. I believe in miracles in this life, and I am hoping and praying for one for Caida. But even if the answer is "no," I still know in my heart that her suffering is only a temporary thing, and that someday we will ALL receive bodies free of pain and imperfections. What a glorious thing to give me hope and comfort on days like today!
Please send your good thoughts, well-wishes, prayers, or anything POSITIVE our way! Especially Cerene's, if you know her. She could use the support and love even more than Caida, I think--mothers always tend to blame themselves even when they don't need to.